It is remarkable the number of people who have Hypermobility of any kind (usually as part of a condition like Ehlers-Danlos
Syndrome) and who also develop Fibromyalgia or Chronic Fatigue Syndrome (or CFIDS). I myself have the hypermobile variant
of EDS, and possibly FMS. But almost no-one had any solid ideas as to how these conditions relate, and no forum existed where
experiences could be shared. The main problem was, and still is, that relatively little is known about Hypermobility Syndromes
(including EDS and Benign Joint Hypermobility Syndrome), CFS, CFIDS/ME or FMS, let alone the connection between them. Indeed,
conditions producing similar but varying symptoms are called different things in different parts of the world. What causes
some people to have pain with hypermobility and others to have none is uncertain. Regarding FMS, CFS and ME, the cause - whether
it be chemical, psychosommatic, physical, viral - is also hotly debated. In the mean time, with so much controversy surrounding
each syndrome by itself, few are taking the time to investigate how they all interact and offset each other.
Perhaps the main reason for starting a list was the fact that people with hypermobile joints find it difficult to separate
those symptoms from their FMS anf CFS symptoms, or the complications that stem from them. More confusion arises when it comes
to trying to alleviate pain. For example, one of the primary measures used for easing FMS pain is stretching, but this serves
only to exacerbate the strain that hypermobile joints are under. When you put the two together, it's extremely difficult to
separate or cope with them. This list is still in its infancy (only
started on March 11th, 2000), so that's why this website (also a toddler, and the first of its kind) is instrumental in
getting the word out to people who could benefit from it. It also will hopefully act as a flashlight as such, directing some
light on the hazy connection among all these conditions.
All in all, thank-you for your your time here, and if you decide to join the list, I hope that it benefits you some. Dealing
with these illnesses, site building and moderating a list are all very new things for me, and I'm constantly working to make
this site useful and current. If you have any feedback, questions or suggestions, please feel free to use the feedback form
on the 'Get in Touch' page.
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